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Infusiastic on a 5 month cycle

I have multiple sclerosis that began aggressively and rejected most medical approaches to calm it down. I have a range of disabilities that mean I use a power wheelchair full time and spend at least 16 hours a day in… Continue Reading…

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Time to catch up

It was the best of times, it was the worst of times … Reader, I married him. I’ve not particularly been on the ball as a blogger during the pandemic. In some ways, my life didn’t change that much. I… Continue Reading…

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Canada, it’s you not me

Dear Canada We have to talk. It’s just not working. It’s you, not me. No, really, it’s you. This whole idea of having a healthcare system that’s partially controlled by provinces and territories, and partially controlled by the federal government… Continue Reading…

Life

My 13th Cake Day

Thirteen years ago today, my feet got hot, my leg went weird, and within 4 days the Big Bang of MS was complete. I never walked in the same way, the “normal way” again, and within 6 months I was… Continue Reading…

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Following the science

I don’t often talk about the nitty-gritty of my MS, just the broad strokes, but I think it’s time for me to dish out some details in the hope that it will explain the need for change. And, if you… Continue Reading…

ActivismAdvocacyDisabilityDisability Rights

Throne Speech 2020 – Big Aspirations for Supporting Disabled People While Excluding the Voices of those in Long Term Care

The September Throne Speech was touted as being big on caring for Canadians as we “build back better” from the pandemic. While there are definitely glimmers of hope for disabled people in the speech, we will wait to see proof… Continue Reading…

ActivismDisability RightsMS

Disabled adults in LTC and COVID

As regular readers (!) will know, my research focus is on working-aged adults who live in long term care facilities, where the average age is 85 years old and the average resident tends to have some form of dementia. The… Continue Reading…

DisabilityMS

Cake Day 2020

  Somehow it feels like cake is insufficient to reflect on the last year. Perhaps it should be the whole bakery.   12 years ago today it all started. The tingling. The hot foot and then the hot leg. Blaming… Continue Reading…

ActivismAdvocacyDisabilityDisability Rights

Systemic Injustice – the Views of a Disabled Woman in June 2020

Right now, the world is trying to manage a pandemic while centuries old systemic racism in the US may have finally met its match as people take to the streets, as long as “we” don’t get bored with it, and… Continue Reading…

Education

Thesis dreaMS Part 6 – reflections of a slightly mature disabled PhD student

Hi there! Missed me? It’s only been 2 months! It seems that life can get busy being a student, when work and life starts to build up. I’ve thought about a few posts I could have written. I could have… Continue Reading…

Michelle in wheelchair with lightsaber fighting Dart Vader

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