ActivismAdvocacyDisability RightsTechnology

Internet Access – a necessity for the isolated and disabled.

What is a necessity? To get technical, we could look at Maslow’s Hierarchy of Needs:   When asked about exactly this, FCC Commissioner Michael O’Rielly said that he saw necessities as those things firmly rooted in the bottom of the… Continue Reading…

DisabilityTechnology

Technology enhances and changes lives for people with disabilities

Today I read this wonderful article in the Guardian about the effect that Proloquo2Go and an iPad has had on the life of a man with autism. I know the effects of this software as I also use one of the… Continue Reading…

ActivismAdvocacyDisabilityDisability Rights

Disability awareness: individual v organizational responsibility?

When it comes to raising awareness of the issues faced by people, it’s hard to know where best to direct the education – the actions of individuals or the actions of larger organizations. The answer is probably both, but where… Continue Reading…

Life

Life is for living!

In the last week we have had two additions to our family. On Friday, July 3rd, we added Deefer to our family – D fer Dog – geddit?!? (Thanks to David on the TV show HeartBeat for that!). Deefer is… Continue Reading…

MS

Okanagan Grape Escape – what a way to see the Okanagan!

When I got involved with the MS Society Chapter locally in the Okanagan, there was one event that amazed me – and it’s an event I’ll never be able to take part in! For two days each September, the fundraisers… Continue Reading…

DisabilityLife

Quality of Life – redefining the parameters

Getting the best Quality of Life is a big part of your life if you have MS, and it really varies from one person to the next, based not only on your disease progression but also personal circumstances. Quality of… Continue Reading…

AdvocacyDisability RightsTransportation

HandyDart Action with local MLAs @mssocietybc

Today Sherry (our client services coordinator) and I met with our local MLAs, Norm Letnick, Steve Thomson and Christy Clark’s representative, Becky Harmata, met to present our concerns about the provision of HandyDart (known in some places as paratransit) in… Continue Reading…

DisabilityMS

Mr Uhthoff – who turned up the heat?!?

This week in the Okanagan it has been 34C. That’s 12C above normal. Beach time! Party! BBQs! No… for someone with MS this temperature means reverse hibernation. Summer days spent indoors, AC on, hiding from the sun. Sunday went like… Continue Reading…

MS

Tecfidera, I’m not sniffing goodbye

For the last two years I’ve taken a Disease Modifying Drug (DMD) called Tecfidera, a pill that you take twice a day. As I’ve mentioned before, DMDs hope to reduce the rate that you have relapses. I think Tecfidera has… Continue Reading…

MSResearch

But what does it mean? Or mode? Or median?!?

I used to teach an IB maths course that had a lot of statistics in it. I used to enjoy looking for examples of bad uses of statistics in the media. Now it seems I’m finding them in my MS… Continue Reading…

Michelle in wheelchair with lightsaber fighting Dart Vader

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