AdvocacyDisabilityMS

Believe me now?

An excellent but unusual article – a man with fibromyalgia talking about not being believed. Unusual because this chronic illness is most often associated with women, but the disbelief that goes along with it has a long history in medicine of… Continue Reading…

ActivismDisability RightsMS

Disabled adults in LTC and COVID

As regular readers (!) will know, my research focus is on working-aged adults who live in long term care facilities, where the average age is 85 years old and the average resident tends to have some form of dementia. The… Continue Reading…

DisabilityMS

Cake Day 2020

  Somehow it feels like cake is insufficient to reflect on the last year. Perhaps it should be the whole bakery.   12 years ago today it all started. The tingling. The hot foot and then the hot leg. Blaming… Continue Reading…

MS

My 11th Cake Day

Today is my 11th cake day – the 11th anniversary of the day my MS started. I choose to celebrate it, by eating cake, and taking the time to look back over the past year. This year has certainly not… Continue Reading…

MS

Ten years ago

Ten years ago today it was the Thursday of the first week back at school. As an elementary school principal, it was a very busy week, but my body seemed to be flagging. On the Monday, Labour Day, the day… Continue Reading…

AdvocacyMS

Catching up – a day at the legislature

It’s been a long winter, with lots happening in our personal life, and not much time – or inclination – to blog. I’m hoping to catch up with a number of things now, though. Let’s start off with my latest… Continue Reading…

AdvocacyMS

MS Awareness at the BC Legislature

On Monday May 7th, I was part of a team from the MS Society that went to the BC Legislature to spread the word on our priorities to the MLAs. At the same time, my mum was visiting from England!… Continue Reading…

DisabilityMS

Happy MS-iversary to me!

Here we are again – another year older, another year wiser? Certainly another year with MS – September 1st makes it 8 years. As my loyal and regular readers (?!?) will remember from last year, I choose to celebrate this… Continue Reading…

ActivismAdvocacyDisabilityDisability RightsMS

Where do you live?

This is a long post. Stick with it. There’s some tough stuff in here. As part of my volunteer work with the MS Society of Canada, I’m involved in a campaign to look for better housing solutions for people with… Continue Reading…

MSResearch

A trip to the neurologist leads to a tour of the MS research facilities!

I had my last appointment with Dr Kastrukof – all I can say is Dr Carruthers, you have a tough act to follow! My appointment coincided with a tour of the research facilities for supporters of the MS Society, so… Continue Reading…

Michelle in wheelchair with lightsaber fighting Dart Vader

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