DisabilityMSResearch

Charting the course of my MS through MRIs

If you know anything about MS, I’m sure you think you know what’s coming next – a discussion about the number of lesions I have accumulated, gadolinium contrast and the like. Well, you would be wrong! My first MRI, my… Continue Reading…

DisabilityMS

New Year, A New Hope

In December I created a photoblog of my trip to my neurologist. I haven’t followed that with a post explaining what happened in my appointment because it’s taken me some time to process it – and I think I’m ready… Continue Reading…

DisabilityMS

Goodbye Aubagio, Hello CSIL

This week was quite the week for my MS. I thought I would catch up on some of the changes and my thoughts behind it. For the last month, my MS has been getting worse. I don’t know whether it’s… Continue Reading…

DisabilityDisability RightsMS

Star Wars and wheelchair seating update

I just wanted to give an update and a shout out to Landmark’s Grand 10! The manager will reserve a seat for my husband, so I have bought tickets for December 18th to see Star Wars VII! Very excited! There’s… Continue Reading…

ActivismAdvocacyDisabilityDisability RightsMobility

Quality of Life hits the road – Part 1!

What do you think about when you book a hotel room? Location? Price? Choosing between different room sizes and layouts? Choices, choices, choices! And how do you pay? Do you use Airmiles or other rewards? Clickety click! All done! Have… Continue Reading…

DisabilityMS

Celebrating my personal MS Week

Seven years ago this week my MS reared its ugly head. I would say “for the first time” but it’s never gone away since then…my ever present friend. On September 1st 2008 I started with odd feelings in my feet… Continue Reading…

DisabilityMobilityMS

Will someone please tell me how to pull my pants up?!?

I thought I would share my evening with you… I’m going to have to repeat a few things about myself, so my apologies to those of you who know the deal.  I’m a full time power chair user, but up… Continue Reading…

DisabilityTechnology

Technology enhances and changes lives for people with disabilities

Today I read this wonderful article in the Guardian about the effect that Proloquo2Go and an iPad has had on the life of a man with autism. I know the effects of this software as I also use one of the… Continue Reading…

ActivismAdvocacyDisabilityDisability Rights

Disability awareness: individual v organizational responsibility?

When it comes to raising awareness of the issues faced by people, it’s hard to know where best to direct the education – the actions of individuals or the actions of larger organizations. The answer is probably both, but where… Continue Reading…

DisabilityLife

Quality of Life – redefining the parameters

Getting the best Quality of Life is a big part of your life if you have MS, and it really varies from one person to the next, based not only on your disease progression but also personal circumstances. Quality of… Continue Reading…

Michelle in wheelchair with lightsaber fighting Dart Vader

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