AdvocacyDisability RightsMS

Why we need a CDA – to go to see Star Wars!

The election has come and gone, and the Liberals, who are forming the next governement, promised that they will introduce CDA (or a National Disabilities Act) as part of their manifesto. Excellent! Now we have to work to keep this… Continue Reading…

MS

An Amazing Okanagan Grape Escape

This weekend was the ScotiaBank Okanagan Grape Escape MS Bike Tour – a mouthful of a title for an amazing event! Over 140 cyclists had to raise over $300 each to take part, but many raised much more, as our… Continue Reading…

DisabilityMS

Celebrating my personal MS Week

Seven years ago this week my MS reared its ugly head. I would say “for the first time” but it’s never gone away since then…my ever present friend. On September 1st 2008 I started with odd feelings in my feet… Continue Reading…

ActivismDisability RightsMS

A picture is worth???

Yesterday I was looking for a generic MS picture. I went on Google (of course) and googled “multiple sclerosis” (of course) and looked at the images (of course). Many of the images were what I would expect, brains and nerves,… Continue Reading…

DisabilityMobilityMS

Will someone please tell me how to pull my pants up?!?

I thought I would share my evening with you… I’m going to have to repeat a few things about myself, so my apologies to those of you who know the deal.  I’m a full time power chair user, but up… Continue Reading…

MS

Another week with MS – and it’s World MS Trend Day! #WMSTD #cureMS

Just another week with MS. When you have MS you’re never alone and you never have a shortage of people to talk about the most intimate parts of your daily life. Once again – I leave nothing out! In honour… Continue Reading…

MS

Okanagan Grape Escape – what a way to see the Okanagan!

When I got involved with the MS Society Chapter locally in the Okanagan, there was one event that amazed me – and it’s an event I’ll never be able to take part in! For two days each September, the fundraisers… Continue Reading…

MS

Celebrating the Okanagan Chapter at the AGM @mssocietybc

An AGM is a funny affair. It’s one of those things you have to do, and want to do, to open the books and the floor to the general membership once a year. It’s full of motions and bizarre language… Continue Reading…

DisabilityMS

Mr Uhthoff – who turned up the heat?!?

This week in the Okanagan it has been 34C. That’s 12C above normal. Beach time! Party! BBQs! No… for someone with MS this temperature means reverse hibernation. Summer days spent indoors, AC on, hiding from the sun. Sunday went like… Continue Reading…

MS

Tecfidera, I’m not sniffing goodbye

For the last two years I’ve taken a Disease Modifying Drug (DMD) called Tecfidera, a pill that you take twice a day. As I’ve mentioned before, DMDs hope to reduce the rate that you have relapses. I think Tecfidera has… Continue Reading…

Michelle in wheelchair with lightsaber fighting Dart Vader

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